The Craniopharyngioma Online Support Group was founded in 1996 and currently consists of over 400 craniopharyngioma patients, caregivers and medical professionals.
Anyone who falls in these categories is welcome to join. Due to similarities in treatment and outcome, patients with Rathke's Cleft Cysts are also welcome.
Group communication is by a private email list hosted by T.H.E. Brain Trust, a 501(c)(3) nonprofit organization.
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