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Support Group

The Craniopharyngioma Online
Support Group was founded in
1996 and currently consists
of over 400 craniopharyngioma
patients, caregivers and medical
professionals.

Anyone who falls in these
categories is welcome to join.
Due to similarities in treatment
and outcome, patients with
Rathke's Cleft Cysts are also
welcome.

Group communication is by a
private email list hosted
by T.H.E. Brain Trust, a
501(c)(3) nonprofit organization.


www.craniopharyngioma.org/

 

 

Welcome to Torrey R. Amster's Foundation

Funding for care and after care of Craniopharyngioma patients

Torrey R. Amster

   To Remember Always

Synonyms: Craniopharyngeal duct tumor; Rathke's pouch tumor; pituitary adamantinoma (old term)

A craniopharyngioma is a benign tumor that develops near the pituitary gland (a small endocrine gland at the base of the brain.) This tumor most commonly affect children between 5 and 10 years of age.  

Craniopharyngioma causes symptoms in three different ways:

- By increasing the pressure on the brain (intracranial pressure)                          

- By disrupting the function of the pituitary gland 

- By damaging the optic nerve                                                                                                          

The increased pressure on the brain causes headache, nausea, vomiting (especially in the morning), and difficulty with balance. Damage to the pituitary gland causes hormone imbalances that can lead to excessive thirst and urination (diabetes insipidus) and stunted growth. When the optic nerve is damaged by the tumor, vision problems develop. These defects are often permanent and may be worse after surgery to remove the tumor.

 

 

 

 


 

Torrey R. Amster, 14, of Bridgewater passed away on Sunday Dec. 23, 2007. He was a gifted individual and the beloved son of Harlan Amster and Michelle DiLollo; loving brother of CJ, Sydney and Jonah, and loving grandson of Lillian and Philip Amster and Sharon DiLollo.

Donations to the Torrey R. Amster Foundation at 30 Stern Avenue, Springfield NJ 07081 would be appreciated.

 

 

 

http://torreyramster.org, Designed by Valeria Garrido